I received blood during an operation back in 1987. In 1992, my doctor ran some tests and told me I had Hep C. I had a biopsy done, then I went through the Interferon treatment back then (3 shots a week) for six months. Another biopsy showed no improvement whatsoever. The doctor said there was nothing else to do but wait until it was bad enough to get on the transplant list. I never drank much alcohol anyway, but I quit completely. I made it a point to eat healthier and made water my main drink. I practically forgot about it and lived just fine.

Jack J.

I started on an experimental treatment August 2008 which included peginteron, ribavirin, and teleprevir (still a trial drug). The first week of treatment seemed to be going well but after that it all went to hell. I think I got every side effect possible, vision problems, severe depression, fatigue, low blood counts with multiple blood transfusions. My skin turned into scales, lost more than half of my hair, no energy, nausea and vomiting, constipation. My brain had deserted me, I could not think, didn't want to talk to anyone. I was off work for 5 1/2 months, couldn't drive. Frankly I wanted to die. But I made it with help from family and came off the drug at 6 months and found out that time I had been viral free since 4 weeks into the treatment. I guess I can say it was worth it but am still having some long term mental effects. My doctors say they will eventually go away and it usually takes at least 6 months after treatment has been stopped. Well I am hanging in there because I don't know what else to do. I do feel better each day. My advice is to hang in there, but have a good support system before you start treatment. The alternative is liver failure and that is a nasty way to go.

Stephanie W.

I have Hep-C for 16 years. I was told not to drink, but I didn't listen. This is when my life went upside down. I started when I left work one night. I started throwing up blood. I went to the hospital and stayed there for a few days. I keep drinking and was in the Hospital 5 times in 4 years. They had to put a shunt in my body to help the flow to my liver. Six years ago I fell down in my house. I was rushed to the Hospital. I was in a coma. I had my last rites. Two weeks later I got out of the coma. I could not talk, walk or remember my Family's faces. Now I am doing better. I have no ambition to drink. My Doctors saved my life. I thought I was like superman, and anything would happen to me. I was wrong I hope this will help others. Alan

Alan M.

I was diagnosed with Chronic Hep C in May 2007. I must have received the virus through numerous blood transfusions I had due to surgeries before l992.

Linda G.

I have been on the treatments for hep. c for 6 months. My thyroid took a hit, and now I take 1 mil. of thyroid med, but recently found out my enzymes are back to a normal level. 4 more shots and then wait for 6 months and check my blood again. My Dr. says it looks good.

Pastor Donald S.

I am currently on tx for hep c, at week 9. I was ud and wk 12 still ud. I am geno 1a, tx has been really easy for me so far, just did shot 15 out of 48, side effects are not to bad to deal with. I walk 30 mins a day and live a healthy lifestyle thats about all one can do.

teri s

My name is Brenda. I received 2 pints of blood in 1984 after 20 years 2004 is when I found out I have Hep-c type 1 stage 3. I did the treatment shots and 6 pills a day. It worked but only when I was taking it. I went back to the Doctor 3 months later and I still had it. I go to U.N.C. in N.C. for my treatment or should I say M.R.I. and blood work every 6 months. I am now at stage 4 and I now have cirrhosis of the liver .The Doctors are watching a spot on my liver. I go back in oct. 2009 to U.N.C. I am 50 years old I lost my father in an auto accident when I was 11 years old. Then 10 months later I lost my mom, 2 sisters age 3 and 9, my aunt, her 2 kids age 9 and 12 and a friend killed in an auto accident dec.12,1971, then I lost my oldest daughter in an auto accident on sept.6, 2001. She was 26 years old and left behind 3 little girls that was 5 days before 9-11-2001. I thought the world was coming to an end. Then the next Sept.13, 2002 I lost my sister to heart failure at the age of 48. Then I find out I have hep.c now cirrhosis of the liver. Can you believe this life I have lived? I know everyone has their own story to tell so I am thankful for God, Jesus, and his holy spirit because without him I would have never made it this far I can see where I have been when I turn around but then when I look ahead I can see the finish line and I am no quitter. I did not go though everything that I have for no reason there is always a reason for the things we go though in Life. My life has made me realize that I can do nothing without the Lord in my life. But with the Lord I have crossed creeks, rivers, oceans, hills, mountains, valleys, stepped in quit a few holes, been though the woods but through it all I still can see the finish line and believe me I am going forward. I am not giving-up. I am not turning around because by the Grace of God I will wear a shining crown some day. Thank you for taking the time to read my life. God Bless you all Brenda

Brenda P

Seven months into treatment, and I am still looking for answers. Anyone who is on this treatment can only feel for me and how I must feel. I'm too tired right now to tell about it in detail, I just wanted to touch base and let people know that there are people out there doing treatment every day and going to work and taking care of daily chores.

I can not believe that it is seven months and I still have my wits and more determination than ever. You need to have a goal to push you, as well as a very strong support from family and friends. My support comes from My Mom and my girlfriend. They don't bother me about my tired look or push food down my throat. They welcome any time that I have enough energy to go out with them and make us all laugh.

My side effects are greater than what I was hopping for.

I've already been to the hospital because of a serious rash. I got through it while on a one week vacation riding my motorcycle around the North in ontario. I could only ride a few hours a day but my girlfriend didn't say anything negative, she just enjoyed her time with her man. Waiting for the day when he will have all that energy back and than look out. I have a lot to do as say, when well and not sick like this I am so active I have no choice but to go go go. I usually don't sit down for long before i have an idea and I'm back at it.

Since my treatment I can not do much and i take so many stabs at it to complete any task its disheartening. I'm going to eat now since its noon time and I must eat on time to keep my energy up so I can go out on my bike and at least enjoy an hour of the week end.

Take care and think positive.

Ronnie M

I was diagnosed with Hep C in 1998. I am a nurse and I received a needlestick from another nurse accidentally from a Hep C positive pt. Bad Luck!!!! I have Genotype 1a. The most difficult to treat. I have undergone 2 separate 48 week therapies (Combination and Pegylated Interferon) treatments. Both of which were unsuccessful... I am feeling fine but hoping a new and more effective treatment may be on the way. I take care of patients daily who are dying from chronic Hep C complications. It is a miserable end to a horrible disease!

karyn m

I had hepc for about 5 years before i started treatment. I was a 1 on the cirrhosis scale which was a little scarring. I started interferon injections with the Ribavirin pills. I did have a little bit of depression i think was associated with the treatment. I waited for the nausea and flu symptoms but they never came and what did come was very light. The Virus was undetectable after 3 months and has remained so far undetectable. It will be 5 months god willing in a few days. Other than a small relapse with my addiction, i will be drug free for a year and a half. I am not taking my second chance for granted and am determined to be drug free for the rest of my life. The interferon and Ribavirin along with a dedicated Dr. and nurse team has so far changed my life. It is great feeling hungry again and not waking up feeling sick everyday. I thank god and the combination therapy.

Bradley s

I was infected with Hep C from a blood transfusion 31 years ago. I was never much of a drinker and did not know I had the disease until I had a total knee replacement done. I am against the Ribavirin and Interferon. I am also 70 years old now. I take Milk Thistle, Alpha Lipoic Acid, lots of Vit C, Echinacea, and a multiple vitamin. I stay away from liquor entirely. I am still asymptomatic, and was never sick with it. My viral load started at 14.9 million, and is down to 6.92 million. I have faith in G-d, and I totally trust in my faith, staying away from liquor, and a healthy diet.

Regina B

I caught it from my adult children. I'm terribly upset as you can imagine. I was raised around druggies and I left home at 15 and changed my life completely away from the emotional drug alcohol abuse I endured as a child. My hub and I worked hard and did all the right things for our 2 kids they are 28 and 22 now I didn't know they were abusing drugs prescription drugs. My daughter tells me she has it because she shared the water cup her and her bro shared when shooting up roxicontins and oxycontins Ii started to cry. I wonder how 2 educated kids could do this to themselves and myself and their dad now I have it. I guess my son was using my razor I didn't realize it I cut my self with it and have been feeling awful now for about six months, gonna lose my business I own a tattoo shop I'm so disgusted my son also works there we can�t do that kind of business with hepC... I never lived a high risk lifestyle and now forever my life will change I have other health problems which will complicate things I'm afraid and feel alone...

deb s

I am 30 years old and have Genotype 3 HCV. I had been a drug addict since I was 13, originally speed, then ecstasy, cocaine, marijuana and alcohol and in addition very high dose doctor prescribed benzodiazepines (valium) for my mental health issues (IE severe self harm), I was first prescribed valium at 11 and addicted by the time I was 14. This has been a dependence I have not been able to kick as yet, but I use doctor prescribed doses and never more (now). By 14 I could not attend school without a line a speed my mental health problems were such I felt I could not connect with others or function in the social context of normal life. I was expelled when I was 15 for taking my work experience in a chemist and stealing a large quantity of Temazepam.

In a lot of trouble I stuck to a curfew set by my parents, but my speed habit meant I could not sleep. I would stay up all night and study and managed to get 9 GCSE at A-C, despite not being at school for the last year. I was suffering from speed related psychosis by then and having schizophrenic episodes where I was not able to distinguish between my own delusions and the truth. Then at 16 my then boyfriend off 1 year died of a drug related overdose, instead of using this as a time to take stock, I went on overdrive. I was only a 16 year old girl but I took anything i could get my hands on and although I had been recruited to work on a magazine project in Brighton, this was also where i found heroin and the relief I had been looking for.

I met my partner and we moved together and quickly got a mortgage. He was kind caring and dare i say it, a little gullible. When he found out I was smoking heroin I persuaded him to try it, rather than berating me. He did and it sealed our fate. Now with a mortgage, a car and a �100 a day each for heroin and �50 for crack to find, it was only a matter of months before I was injecting. My ex worked to keep our outwardly normal life going, he paid our mortgage but we were to get into further trouble with �15,000 of unsecured debt and credit cards. It was then I decided that my low paying jobs a petty crime were not going to suffice to cover our habits and I decided to work as a high class escort and earn �500 an hour with the intention of covering the debts as well as our habits.

I did earn �500 pound and hour and I did that at least once a day often several, but instead of paying off debts our drug use escalated and soon our house was being reposed and I was being forced into rehab after being sectioned twice, for mental health problems and suicidal episodes. (I was diagnosed at the time with Bi-polar which runs in my family; as does alcoholism, drug addiction and general ill mental health).

Upon leaving rehab, things were at their worst, the flat was in the process of being sold to pay back the building society and our flat was more like a crack/smack den than a home. I had to visit more and more scary places to score drugs and on more than one occasion I was scared for my life and indeed kidnapped, punched in the face and thrown from a moving car.

We moved away when the flat was sold with the idea of getting clean, we never managed this but we held down respectable jobs, kept our use to about �40 a day each and I went to college to do A levels and on to university to do a degree in International Relations and Politics.

Had it not been for my deteriorating mental and psychical health, you probably would not have guessed I was a drug addict, I worked as the co-editor on a music magazine in digital format and as an insurance underwriter to bring in a little extra. I bathed and dressed well; we had an Audi and thousands of pounds of stereo equipment, to service my hobby of dj'ing. Despite this was the low level using and high level Methadone dependency - 130 mg with approximately a gram of heroin a day on top and a fast increasing Benzo addiction. My doctors provided me with ample amounts but I brought thousands of pills of the net making me erratic, have blackouts and eventually lead me to become once again sectioned.

My partner left me at this point no longer able to cope with my behaviour and deteriorating health; I had slept with my daughter's father behind his back and I didn't even know I had done it. I was in total blackout from the pills, had several infections, including two abscesses in my groin which was my injection site, I weighed 6 stone and the pills worsened my mental health as well. After he left I was homeless and began a career of petty crime while living in the local bail hostel, after 51 counts of shoplifting, handling and stealing from an employer the courts had had enough of me and sentenced me with a DTTO.

I was given a Drug Treatment and Testing Order (DTTO) this would later unbeknown to me be one of the factors that saved my life; as it would provide not just punishment but also help in the crisis points of my life, such as my poly addictions and proper care by the mental health team. Plus joined up multi agency help; that was to include health services and the police and probation, as well as rigorous drug testing, counselling and group therapy. This punishment was to serve much more useful to me than the many maintenance and detox programs I had been on, in patient rehab centres and In Patient mental health care.

In addition only months later came the point of change in my life being as I had clearly been at rock bottom for several years, to my salvation (and I honestly believe I would be dead now otherwise) I found out I was pregnant. This was despite not having a period for many years and having been told my changes of conception were unlikely, I was still in this homeless shelter, and even my family could no longer help and had many years previously turned away from me. The night I did the pregnancy test I threw my last gram of heroin down the toilet, unfortunately graces dad did not do the same and continued to use.

He had by this time (I was 3 months pregnant) got himself a Benzo habit too, I was no longer using illicit drugs and he was. He did an armed robbery on a chemist for pills and I was there but not involved, however we were both arrested for armed robbery and in the cells that night all I could think about was my unborn daughter. Next day the CPS downgraded my charges to handling and my DTTO was increased in length and time. Graces dad went to prison for 4 years and I slowly but surely turned my life around. Alone.

As part of the DTTO I had to give drugs tests (mouth swab DNA ones) 3 times a week, I never gave a positive one and adhered to the sentence to the letter knowing it was the only way I would keep my baby. And indeed the court quashed the order early due to complete compliance and recommendations from all the agencies involved in my care that pregnancy had changed me un-recognisably.

Before she was born I was adamant she would not be treated with drugs following her birth to ensure she did not suffer from withdrawal symptoms unless absolutely necessary. I researched and printed off American studies that showed babies need not be treated with morphine even if the mother is addicted to opiates if they are breastfed and the supply of breast milk is gradually reduced, much like a substitute withdrawal program. In my 'safe' second trimester I reduced from 130mg methadone to 30mg and got down to 30 mg of Valium with no illicit use at all.

My daughter was born a month premature, but had been very closely monitored, the doctors agreed to my breast milk reduction as I did want my daughter to start her first few hours in life high. It worked, she was not treated with drugs and we were allowed home after 6 weeks with no harm to baby or mother or any discernable signs of natal withdrawal. I then slowly reduced the breast milk she received until she was entirely formula fed at 6 months old still free from withdrawal symptoms.

When she was 6 months old, my parents who had retuned to my life now the drugs were absent, looked after her while I went cold turkey from the last of my methadone, and social services, not only kept Grace off the at risk register, they decided their involvement was not necessary. Since then I have been an excellent single mum to an intelligent, bright and happy young girl who is now 3.

So when did I find out I had hepatitis C. well last September following a year of unexplained health problems and terrible joint pain. I contracted two bouts of shingles, two hospitalizations for illnesses normally dealt with by anti-biotics in the community, then graces father called, informed me that he had been tested and was positive and he must have caught it from me, as he had often used my equipment after I had. I requested the test from a locum Doctor as mine was on holiday and 3 weeks later came the shock news that I was in fact positive and had a high viral load.

I know when i got the virus and that was a very desperate day, when I ripped open sharps bins and cooked up other peoples congealed blood as I was in withdrawal 10 years before, this would have been 1999. Being as I had been in the system I believe there were man occasions when an LFT or HCV test would have been a normal useful diagnostic tool of the health professionals treating me. My doctors were aware I was a practising injector of heroin and crack, i was involved in the drug services, I was hospitalised for abscesses in both sides of the groin the hospital could have tested but it took for me to request that test to finally find out I had the virus

I have genotype 3 and am nearly finished 6 months of combination treatment. My GP has been badly informed about the virus and treatment, and unwilling to deal with anything at all related to side effects or treatment and has been nervous about prescribing for secondary infection or non related illness as he is naive about drug interactions of HCV treatment and has on many occasions left me in pain and in unnecessary illness. My team are unhappy to prescribe for anything but treatment drugs; so in the case of low blood counts and WBC's and immunity against infection I have had little support. On one occasion I had a chest infection, the GP would not prescribe anti biotics despite my near dangerous Neutrophill levels and the hospital team were telling me to go back to my Primary Doctor. I ended up taking anti biotics prescribed for someone else, which cleared my infection.

I have certainly struggled with side effects of treatment; fatigue, hair loss, sickness, headaches, migraines on a weekly basis, rashes, secondary infections and fungal type infections and quite serious anaemia (which has reached the cut off level for rescue drugs, 0.75 however I have never been offered them, and critical anaemia along with bringing up a 3 yr old alone on treatment are not conducive to an easy treatment.. I have asked for print outs of all my blood work not having much faith in the health profession anymore, and I have used organisations like The British Liver Trust for practical advice and for social support internet groups such as hepcnomads.co.uk . As there are no support groups in my area, something I intend to rectify upon finishing and detoxing from the Interferon/Ribavirin cocktail.

Despite the crippling side effects, I have been campaigning for more awareness, increased testing, more information and support for the family's and careers of HCV patients, and am using my story to hopefully get others to relate and get tested, thus I am due to be featured in a major daily newspaper and my testimonial is printed on many sites. This is only the start I am writing an autobiography which I hope to get into the publishing process next year and intend to do more press/radio work.

I don't know yet if my 3-year-old daughter has HCV but i will have her tested as soon as the hospital can arrange it. This has been another source of frustration as I have now requested this test from 3 different health professionals on several occasions. It is things like this that make me lose faith in the health professionals desire to decrease anxiety, in what is a very anxiety producing disease. All the info and support I have needed has come from outside the NHS and my family have had no support at all. I know transmission from parent to child is low risk but both her parents were HCV positive when she was conceived and there is a possibility. In addition social services have not helped me as a single mum who is sick for at least 3 days a week and anaemic, tired, insomniac and with underlying mental health issues.

HCV is a time bomb for the NHS and it needs to act now before its money and resources are treating end stage liver disease and cancers of the many thousands of unknown infected. Hopefully this Strategy will be the start of some necessary change in the NHS in terms of awareness, testing, support and treatment. I am glad to have been able to offer my opinions on the matter and hope you have found them useful.

Kerry T

I was diagnosed with hepc 2 yrs ago. Got it from transfusion at age 13. I was suppose to start treatment but was put off due to my moms cancer dr says not good time to start I am 46 yrs old. not sure when I will start treatment

dawn l

I found out that I had Hep C before it was given a name. I was told I had some form of hepatitis and was told it was Non-A or Non-C.

I drank a lot and was asked not to drink for a month and my test results were still high.

I was seeing a Highly Recommended doctor for keeping tabs on a possible Heart disease. I have 3 brothers and 2 sisters who have all had to have surgery. So I saw this Doctor as a expiation to be the next with a heart attack. I was told I showed no heart illness, but he did find I had Hepatitis.

I did not follow up on this and continued to drink. Over 15 years I saw 2 close friends die with Hep C and one had two liver transports.

I lived as if I had no knowledge of my illness. I became very ill after losing all that I worked for in a disaster and I guess drank my hurt away.

Next thing I know I am at LSU Medical Center and being told I was on an emergency liver transport list.

When told this I chose not to have the transplant or the treatment that just came out of trial with about a 50 % rate of success. I was told without some actions taken soon I was given 7 months to live.

I chose to check my self out and gave up drinking. I did all the research I could and treated myself with herbs and diet.

It has been over 7 years since then. Symptoms seem to be getting worse and I expected this to happen.

My question is does anyone have experience with natural herbs or vitamins that may help me.

William B

I had a blood transfusion in 1978 and contracted 'non a - non b' hepatitis. Thirty years later, I have routine blood work and my liver enzymes are elevated. I am not a drinker so I was referred to a specialist.

I started interferon/ribavirin treatment on March 27th for a 48 weeks therapy. I am genotype 1b. By my 12 week blood work, I was virus free after starting at 3 million viral load.

I have lost weight due to nausea/diarrhea/no taste for food and I have lost some hair. Fortunately, I had thick hair to begin with. I am anemic and consequently, I am tired. I am retired so I can monitor this at home but it is frustrating since I live alone to not be able to always do things for myself......or, I am very slow.

The worse part of it is that my 3 year boyfriend deserted me via email in late July........he still won't speak to me for some reason. He went to the doctor with me, encouraged me to start the treatment and said he would support me throughout the treatment.

Guess what........I am doing this on my own and what miserable symptoms there are seem worse after this.

Debby D

Hello.. I have geno2 hepc in week 10 right now. The side effects aren't the best (how many choices do we have?) I have anemia from the treatment and hospitalized 2 times in 2 wks for dehydration. My doc put me on epigon, my dose was reduced. I found new hope to follow through w/treatment after reading your stories. Thank You All

carolyn r

Hello, my new family,

Today I found out I am positive for Hep c along with my oldest Son. Now I am worried about the rest of the family, due to various health reasons. It seems so overwhelming. I do know that I have lived thru the "crack wars" of the 90's and all that so I know God and my Angels will be here to help me through..

Suzan M

I contracted hep c in 1976. So I've had it a very long time eating away at my liver. I was diagnosed in 2000. Went thru the treatment twice with no success. It was only last year 2009 that I've started experiencing problems. I've got cirrhosis, portal hypertension, esophageal varices, enlarged spleen. But all in all I still feel fine. Just some fatigue, need to sleep a lot. I've just had my esophageal varices operated on and now that is under control. My liver looks so bad from the cirrhosis as seen in MRI and CT scans. I wish there were some true herbal remedies or clinics that specialized in this area.

G D

I was given a blood transfusion when having a commisurotomy. I was diagnosed with Hep C after bout 30 yrs. I have been to counseling, meetings of people who had Hep c. Been through all treatments possible. When I Last saw my Infectious disease dr. was told no new treatments were available. My geno type is or was at last visit 1-B . Was told would have an early death at that time. BUT my faith and wanting to survive had kept me going. Feel talkin bout this and not giving but being a fighter & keep a positive attitude has helped me out alot. My viral count was over 50,000,000 Unfortunately back then they did not know bout it. I do have many health issues but still keep going. Have faith and also knowledge is the best help. I am now 59. Had this since about age 25.

Elisabeth A

My daughter was an alcoholic and was drinking very heavily right before her death. She felt like she had the flu so she was taking a lot of tylenol. Before we knew it she was in need of a liver transplant but didn't make it to ever receive the transplant. She died very young and very tragically and it is something I never want to see anyone go through again. I would love to share my story with everyone to prevent this from ever happening again.

eileen v

I found out in March 2009 that i had hep c, I felt very dirty and ashamed. My doctor referred me to a specialist and after many tests i started treatment in August 2009, I was very lucky to have very few side effects from treatment and found it quite easy, my biggest worry was transmitting the virus to my 7 year old daughter.Through out treatment I lived in denial alot of the time as if I didnt even have the disease, as I thoght that if I thought about it too much I'd have a nervous breakdown. I have just finished 6 months of treatment (I was geno type 3) and my test results show that there is no trace of the virus, which I'm very happy about (no more worries!), I'm very confident that it will not come back as the nurse explained to me this only happens in 0.0 per cent of cases. My advice to anyone considering treatment is go for it, in my experience the side effects sound alot more exagerated than what they actually were in my case, I only occasionally suffered cold and flu like symptoms and fatigue that can be eased with pain relief. Stay positive and get all the support you can get, the Hepatitis c council are great at offering support as well as the Hep C nurses at your hospital your being treated at.

Anita B

Feb.26, 2010

Dear Sir or Madam,

My name is Dennis Palmer and I am a retired serviceman. I retired in 1997 after almost 25 years of faithful and honorable service in the world's premier fighting force, the United States Marine Corps.

In 2003 I was diagnosed with Chronic Hepatitis C. After three years of self denial I opted to go through with treatment, so in July 2006 I started a 48 week journey to slay the dragon, consisting of Interferon and the highest dose of Ribavirin, 1200 mg. At the end of 48 weeks, in June 2007, I was left with a shell of the person I was before starting treatment. September 2007 I relapsed. To this day the side effects from treatment still linger and...I still have Chronic Hepatitis C.

Since first being diagnosed in 2003 I have racked my brain to try and figure out where I could have contracted the virus. With only two possible connections I decided to file a claim with the Veterans Administration in 2008. I knew from research that the jet guns used in vaccinations were a "plausible cause"� (and that's how I received my inoculations when I went to San Diego for boot camp in 1971). I also came in contact with blood while serving in Haiti. So, based on that (and the information was sparse), I filed. The request came back in 2009 denied. They stated that I didn't explain the etiology well enough.

In February 2009 I lost my job to what I feel were the lingering side effects of my treatment in 2006-07.

In March of 2009 I ran across an article regarding tainted blood products in the 1980's and 90's. The article mentioned among other things, Intramuscular Immune Gamma Globulin (IGIM). Knowing that I've seen those initials somewhere before, I went through my medical record and discovered that in July of 1995 I had received an intramuscular immune gamma globulin inoculation prior to my deployment to Haiti. Noted in my medical record was the manufacturer Armour Pharmaceutical and the lot number was M8012. Using that data and other information regarding the possibility of Hepatitis C tainted blood products that I've come across in my research; I resubmitted an 87 page etiology to the VA in September 2009.

In the meantime, through the Freedom of Information Act, I requested from the Food and Drug Administration any information that they could provide regarding Armour Pharmaceutical and the lot number between 1995 and 1998. What I received from the FDA astounded me.

I knew from my research that Armour (now Centeon) had some serious issues with blood products. I knew of a consent decree with Centeon and the FDA in 1997 and I knew the FDA wasn't very good at policing the drug companies during that time frame. I also knew that the FDA asked the drug companies in 1994-95 to begin testing all their lots of IG products for the possibility of contamination of the Hepatitis C virus. In 1996 the FDA requested Centeon to test certain lots for Hepatitis C contamination. Centeon refused to test them and ordered their products off the market. What left me puzzled was the reason the FDA asked the drug companies to test their lots and why did Centeon refuse.

The letters I received from the FDA made it a little clearer, I think. In their typical bureaucratic lingo, in a letter dated June 13, 1996 from the FDA to Centeon, the FDA �requested� that Centeon implement new testing protocols using a newer version of the Polymerase Chain Reaction (PCR). The PCR2 was supposed to be more sensitive to the HCV RNA. They went on to further state that "Since January 1996, FDA has tested a number of lots of IG with both the original PCR protocol and the PCR2. A small percentage of lots that tested negative with the original protocol yielded positive results with the PCR"�. But, not to make anyone mad, they had to downplay a lot of their comments.

The response from Centeon was arrogant and full of "we can do no wrong" comments. In their letter to "Dear Healthcare Provider"� dated June 24, 1996, it states, " Centeon L.L.C. has initiated a voluntary withdrawal of certain lots of its immune globulin products that were manufactured after December 27, 1994. The products being withdrawn bear an Armour Pharmaceutical label"�.

In addition to those letters I received from the FDA was a list of 19 lot numbers (M8012 included) that were "withdrawn"�. Lastly I have CBER FDA testing results for Lot M8012. It shows that by using the PCR1 method, the virus was undetected but, when they used the new PCR2 protocol, it clearly shows the presence of Hepatitis C. PCR1 was the standard by all pharmaceutical companies until the FDA ordered the new test implemented in 1996.

The information I received from the FDA was sent to the VA as additional information in support of my claim.

In an April 19, 1995 memorandum from the Assistant Secretary of Defense to the Surgeon General of the Army, Navy, and Air Force and referencing the Armed Forces Epidemiological Board memorandum of February 28, 1995, it directed the armed forces to begin using the newly licensed Hepatitis A vaccine in military personnel in lieu of the IG. My innoculation was given to me on July 20, 1995.

Besides the fact that I still have Chronic Hepatitis C, the side effects from the Interferon/Ribavirin cocktail still haunt me today. The worse is the fatigue, memory loss, and my ability to concentrate. I went from being an exceptional multitasker to one who has to make a grocery list for two items. The treatment destroyed my thyroid and I will be on medication the rest of my life. God was gracious enough to allow me to spend 35 years with my wife and we've been blessed with four beautiful grandchildren, the oldest being 8. But, will I live long enough to see them grow up? Will they remember me once I'm gone?

So, why was I given this death sentence? That's about the only question I haven't been able to find an answer to.

The intent of this letter is to bring awareness to the fact that many veterans may be infected with this insidious disease and not know about it. Not only veterans, but anyone who may have received inoculations from one of the 19 lots before they were withdrawn in 1996. Each lot contains approximately 17,000 vials. I am currently waiting for the VA to decide on my claim that was submitted in September 2009.

Sincerely,

Dennis Palmer

Dennis P

I figure I contracted hep c about 37 years ago. I was a heroin addict, not heavy but an addict on and off for a few years and quit 37 years ago. I was amazed to find out that I had hep c about 12 years ago. I live in northern Italy and have always adored red wine and I used to drink a fair amount of it-always good, natural and right from the country. I had taught English to a doc, internationally well known in the hepatitis field and so saw him. I had never had any symptoms but the blood tests were just prescribed by my gynecologist for some reason. Anyway the hep doc said no alcohol and to me that was a tragedy-I said I can give up salami, fatty foods, rich cheeses but please don't tell me to cut out the wine! Anyway I did cut out the wine and then did 6 months of interferon, mantadene I think and ribavirin. Went into serious apathy and so tired I could hardly hold my jaw closed. They took me off it-I am genotype 1b-generally not a good treatment responder. Did not kill the beast. I have been taking milk thistle for about 10 years, I practically never eat meat, I drink a herbal tea good for the liver, drink red wine moderately. Fortunately Italy is a land of good healthy food. I am 65 and my liver is in pretty good shape. One of the best things you can do is to feed your liver with healthy foods-there are some real liver lovers in the vegetable world, take milk thistle and live moderately and positively! Give your liver a pet name and take care of it as a pet you love!

rita r

Hope you all well. I knew by chance through a medical check-up that I contracted Hepatitis C. I was shocked but strange enough my strong religious belief made me accept the news and said to myself I will live my time as if I did not know about it as I am not suffering from any complications, but a friend doctor told me that I should seek medical help. I am on liver enzyme medication and as I am over sixty my doctor does not recommend antiviral treatment as my genotype is 1b and virus load is 16000. Another doctor recommend a low viral treatment for a month and then decide on going on or stopping. I think it is always a question that comes to a patient mind when one has a choice between 2 vital decisions. I am still hesitant as I am afraid of digging on and then suffer from the treatment side effects while now I am not complaining from any symptoms except some heartburn gushing. I am still hesitant about treatment hoping that something new with less side-effect would emerge before it is late for me. I change my lifestyle and I am following a more healthy diet with no red meat and plenty of seafood and vegi. Also I am taking some liver support. I hope that I will take the right decision by the end of the month. Pray for us all.

magda a

I was diagnosed with 1a Hep C in 2000. I got it through sexual intercourse with a boyfriend after about 1 year. At the time he didn't know he had it. When he found out he tested positive so I got checked to find out I had it too. He started interferon and Ribiverian therapy. His side effects were just awful. That really frightened me from trying the medicine. I took milk thistle and some other herbs for 3 mos. since December and felt pretty good. Now all of a sudden since the doctor said my liver has almost expanded down to my hip I feel really brain foggy and little stabs of pain in my liver area. I am started to worry that my chances for recovery are getting slimmer. Even though I am afraid of how I will do, I don't see any other option. I hope I will be able to work and keep supporting myself and not go crazy or do anything I wouldn't normally do.

Judy W

The way I tell it is like this...

You've heard of "Gitmo" the Naval Base where they send the "worst of the worst" terrorists? Well, in 1977 I worked as a corpsman at the Naval Hospital that was the Gitmo for microbes. I had an accident with a needle used to draw blood. At the time nobody knew what it was that was killing Vietnam Vets sent to us, just that it killed their livers just before it killed them. We guessed it was a virus, though other theories like chemicals from plastic IV equipment came up as well.

There were, of course, none of the extraordinary precautions used when handling blood that are standard today. But we knew it was serious when I got stuck.

I'm guessing I owe my life and current chances of survival today to my charge nurse that day who got me into the supply room to scrub the wound right away and down to the ER for a GG shot, (pretty ineffectual but something, at least). But most importantly for my welfare today, She made sure it was DOCUMENTED in my military health record.

So, I'd like to take this opportunity to thank you, LTCMDR D.

These days I get by. Thanks to that documentation I get social security disability though nothing from the VA. They offered the"death by lethal injection" treatment but I opted out from that. 6 month check ups were offered but that proved to be a waste of time.

The only thing that seems to help is the lifestyle changes I've made. I discovered by accident while trying to save money that shutting off the electricity in my cabin made me feel a lot better. I've since had the electric shut right off and so long as I stay there I feel pretty ok. But here at the Library where I'm on line and the electricity is flowing all around me, my liver is already singing the blues after only about an hour.

For my diet I read the labels on every package of everything I eat and anything that doesn't say something like.."whole wheat. Period...I don't eat it.

I avoid all medicines if possible, including herbals except that I found a lot of Indian Cup plant growing around my cabin and I find the boiled root very soothing.

That's it. Listen to your body. Mine tells me, in no uncertain terms, what works and what doesn't. mc.

Mark C

Hi Friends

I just found out about 3 days ago that i have hepatitis C. Not sure what type yet. I don't have support from many people except for my sister and my brother in law and of course my long time friend Jesse. My nephews help me alot too but they dont even know they are helping, they are only 5 years and 2 years old but they brighten up my day alot. I was scared at first but im not so much anymore. I will be turning 18 this saturday and just want to be a normal 18 year old again. I dont feel that way right now but im strong and i will soon. My biggest problem factor is my parents. They act like im dying right now and make me feel so guilty and helpless. I just want to enjoy my life and live exactly how i did last week. Stay strong. Mind over body

Angel M

Hi, My Name is Alice and I am 68yrs old and I think I am 18. I was told I had Chronic HepC and at the time I was 17yrs sober. After I was operated on for Colon Cancer 11 yrs ago. To be honest I didn't even know What HepC was. I just thought it was some kind of Virus. The Doctor told me I was not dealing with Hep and send me to therapy. Glad he did. I had alot of issues. The doctor said I should go on Interferon. I do not recommed this for everyone. In 2001 I was introduced to alternative medicine.

I did acupunture for 5yrs. I learned about the correct way to eat for the Virus. I had alot of anxiety so I do Yoga. I excercise 5 days a week in the gym and walk 3 miles the other two days. I keep a positive attitude and I read everything I can from Hep-Central and Natural-Wellness. Three months ago I started Maximum Milk Thristle and it lowered my ALT and AST levels. I think the most important thing for me is to stay positive and live life one day at a time and have fun.

I hope my story can help someone. Wishing you all a great day and hope you feel better. Alice

Alice R

I recieved hep c from the tampa va hospital in may 2002, from bad blood that the blood bank messed up on and sent up too the surgery area. this dr came running in and called me every name in the book, and my wife was sitting there and it floored her also. needless too say that doctor no longer practices in any hospital that I know of today. The VA never said that they was sorry that it happened, but the VA did pay me a penison at 40% and now 8 years LATER THEY WANT TOO STOP PAYING ME FOR THEIR HEPC SCREWUP. I'm thinking about suing the VA.

Wayne M

I was a dental assistant for 20 yrs. In those days (1983) Dentists very rarely wore gloves. I did and sterilized instruments the best way I knew how. The Hepatologist felt I got HCV while working there, about 1993. I also had a blood transfusion in 1976. I went through Peglyated interferon/Ribovirin with no success. I feel badly most days. So when I do have a good day I am overjoyed! God is my strength in this.

Bren A

I was diagnosed with Cirrhosis with Portal Hypertension after passing a kidney stone about 4 months ago. I went to a local doctor and he said it was because I was an alcoholic (I haven't drank in 20 years) and when I did it was for about 4 years from about 17-20 years old! After some labwork the doctor told me that it was HCV. Now that made more sense. The doctor said that it was because of drugs! But I never used needles! I told him that I was a nurse and had been for about 20 years! I have been exposed to blood on more than a dozen episodes where I came up on a wreck or when I was working as a EMT. I decided to get a second opinion and that is where I found out the truth! I have been on Interferon and Ribaviron therapy for going on 6 weeks. I do great from Monday to Thursday, but on Friday evening I take the shot and I feel like crap the rest of the weekend! Some weekends have been not so bad! While others are terrible! I try to exercise during the week and I play full court basketball 2-3 days during the week for about 1-2 hours each time. In the beginning I had a terrible bout of depression and felt like the world was coming to an end and I was taking Wellbutrin! The doctor raised my dose to 100 mg three times a day and that seemed to do the trick!

I still get a little emotional at times and have to be careful about watching movies that can make me cry! LOL! My wonderful wife and three daughters have been very supportive for me. I have two that are away to school (19yo, 21yo) and one left at home (16yo). I have a very supportive church family as well! I do not know what I would do if I did not have Jesus as my personal Savior and Lord! I found out this last week that my viral load was down significantly and the doctor is very excited at the progress of the eradication of ther virus! I am able to work and am thankful of having a flexible schedule! There are days that I wish that I would just die and am about to lose hope, but those are the days that I have to reach way down and pull myself up by the boot straps! Some time you have to just put on your big boy pants and just deal with it! I am 44 years old and have alot to live for! More importantly, I am not afraid to die since I know where I am going, I think that is what keeps me going! The only problem that I am having is that my platelets stay really low (thrombocytopenia)! And that does concern me! I just keep focused on God, family, work, and a hobby (I am building my own camper). One day at a time!

Eric L

Don't give up on your liver

HCV and Cirrhosis have been the main focus of my life. In 1980 my mother was diagnosed with cirrhosis of the liver. In the early 90'�s they informed her that they had found a new strain of Hepatitis, it was called "C"�. They gave her interferon for a time, but it made her so sick she didn't want to take it anymore. I only wish that we would have understood what the outcome could bring by not treating this.

In 2004, my mother died of liver cancer. I stayed with her for two years, watching her slowing deteriorate . She had two surgeries, trying to remove the cancer, but it was too late, it had spread. This was the most painful time in my life, seeing the mother I have, that was always so full of life and extremely active, die in this way. Needless to say I was so depressed, couldn't get out of bed. Finally went to the doctor for my depression, and was informed that I had Hep C., since 2002. They had overlooked the test results. Talk about a BLOW! Losing my mother, then my other love, (my dog) and finding out I had Hep C, geno 1, all in the same month, sent me into the gloom of life. I told no one. Kept all my pain inside. The doctor told me that I needed to look into treatment, NOW! Of course, every doctor I went to irritated me because of, what seemed to be their lack of knowledge of the virus. One hospital said that they would treat me in a study, (of course, I wanted no part of being a lab rat). Anger was taking over my judgment, of what was real. I just wanted it to go away. Mentally knowing I had this and the thought of the same thing happening to me as did my mother, took me back to the doctor. This was 2007.

I went to a Gastro doctor, he put me on SOC. He also told me that he had not treated many with HCV. Another, "OH BOY"� moment. I went ahead and started the SOC, with a good attitude, that I would get through this and not let myself feel bad. Well I gave it a good fight. After getting started, he checked me at 6 wks, I had over a 2 log drop. So I continued. At the 24 wk point, checked again, and was back up to 2 million. He kept me on the meds for the full 48 wks. At the end , he shook my hand and said, � sorry, may-be within the next 5 years they will have a new treatment�. I was a non responder.

I found out through my brother the next week that his boss had gone into clinical trial study. He had just got the results of his 6 month post tx. He was SVR!!! I immediately e-mailed the study, ( my luck had changed). I had gotten an e-mail back just after I sent it. They wanted me to send all paperwork. They accepted me into the boceprevir study. I was at ND, by wk 12, and stayed that way through the 48 wks. The sx where a little more intense this time around. I wasn't sure if it was because only a month before I had just went though 48 wks of SOC, now back in the fight, or if it was because of the boceprevir. The fatigue, of course, was there, pretty much all of the time. I also developed anemia. They had me on procrit shots, average, once a week. Finding out now, I was lucky in that respect too. I also had to take Neupogen, twice weekly for the last 3 months of the tx. All was doable though. I did lose about 60% of my hair.

I'm now at 3 wks post tx and waiting for my results of my 4 wk post labs. I have a great feeling about this. I know that there is a chance that I could be disappointed, but so far I feel very positive. I would tell anyone that they should never give up, stay in the fight, the best way you can. Don't give up on your liver. What this virus can do to it is nothing nice.

My thoughts and well wishes are for all that are fighting, or know someone fighting this battle.

Summer

Summer S

Hi I did the treatment 5 years ago geno type 1, Still have hep c, but I am glad I did the treatment My quality of life has improved Im back at work able to smile again.

I do have my bad days and still can be a crabby git.. But Im not convinced the treatment is the cause of that as apparently I was like that anyway.

I want to point out I know how hard a road this disease makes us travel. and Im not giving up as I will give any treatment a go that may cure this virus. :) Joss K

Joss K

I was 48 in April of 2006 when I found out I had HepC. I had bought a motorcycle and decided maybe I should increase my life insurance. I found out by receiving a letter in the mail denying me coverage since I was diagnosed with a deadly disease. Imagine my despair and disbelief! How can this be I was the picture of health. I took care of myself!

I immediately sought a professional doctor in this area. I discovered I was a Type 3, one of the tougher types to respond to treatment. Well I had to wait over a year while new treatments were being perfected to become a candidate. During this period I continued my exercise routine and became more conscious of what I was eating. (more fish, veggies, fruit, no fried foods or red meat) Because how i felt depended on what I ate. Not that I had horrible habits before I just had to be more selective.

Ironically enough a year prior to being diagnosed I had stopped drinking alcohol because it just was not agreeing with me. I began to look at this disease as possibly a gift, (wake up call take better care of yourself) all the while having mixed emotions. Finally the day came for me to start combination therapy of interferon and ribavirin for 48 weeks. I began on Mother's day of May 2008 and ended on Easter Sunday April of 2009. Talk about divine intervention. I got a new start on life on Easter Sunday; how symbolic does it get!! Although this time period was one of the biggest tests to see what I was made of I some how got through it.

I admit there were days I wished I would just die but days kept coming. By the end of treatment your are pretty beaten down. Mentally and physically. Not trying to scare you just trying to prepare you for what you're in for if treatment is your option. For me, going through with the treatment has been all i could hope and pray for because the virus is now undetectable and damage to my liver has ceased. Also the liver is the only organ that can rejuvenate itself amazingly enough!

If I can be a inspiration to anyone who needs to go through with the treatment i say you can do it. You are not alone, reach out to those who have been through it they know what your enduring.(your support system is critical) And when your ready to start your new lease on life I'm sure you will discover you're not the same person you were, how could you be after what you've been through.(you're extraordinary) Remember to pamper and take good care of yourself you deserve it. Look at it as a gift otherwise you might end up damaged. Who gets a second chance at life? Not many. Last but not least remember to observe Hep C Awareness Day October 1 every year.

Tammy T

This disease hits closer to home than you might be aware of, All it takes is a blood test to be sure, KNOWLEDGE is power, I got tested and even though I am not infected does not mean that I am not affected...Forever supporting you MOM; I LOVE YOU xoxo

May is national hepatitis C month, please help me support those like my Mother who contracted this disease.

Affected but not infected, This disease is misinterpreted; It's not only a "druggie" disease; this silent epidemic has many ways of contracting it; unfortunately my mother received this disease through a blood transfusion that was supposed to save her life; now due to the hospitals negligence she obtained tainted blood and her life has been cut shorter.

My mom is in the later stages of Hepatitis C. She has cirrhosis of the liver, and treatments have been ineffective. She has no one else to turn to medically there is nothing no one can do for her. Pain killers are ineffective and not numbing the pain; leaving her with no comfort.

Day to day life for her includes chronic fatigue. There's days where her whole body just aches, and when her liver becomes inflamed, it's putting pressure on the other organs. Life with Hepatitis C - I don't wish it on anybody.

Where are the posters showing blood transfusions, tainted blood and or blood products? I feel people should be more informed about this disease. My Mother is a fighter, I envy her, she is in the last stages of this disease, which she received through a blood transfusion; bad unscreened blood, hospitals negligence that gave my mother this disease.

Her health is deteriorating, she has no family doctor and or health plan. I hope that people out there educate themselves about this disease and that the government step up and deliver on their promises to compensate all Hepatitis C individuals, You see I may not be infected, but I am affected by this disease and it hits me harder knowing that my daughter may not be blessed to know my Mother for a few more years, as she is now already attached to her!

Hepatitis C; A disease that my mother has been battling for years.

We have to be supportive, and just be there for her, understand her and love her, Like she was here for me, now I am repaying her for all she has done, She is dying and I have come to terms with that, while other family members may be in denial, My two brothers and I are there for her, and will make sure she is remembered in our children, and that this disease is known and people know what hepatitis C is all about. My daughter and I made a video as there was a contest we came in third place, I didn't do the video for the money, I did it to support my mother and to send a message out there to others to get tested, to educate themselves, that there are websites filled with information; hepcontario.ca is one of them and my video can be viewed on you tube "affected but not infected".

Jaime r

I was diagnosed June 2009, I just went to my doctor for my checkup, her office called a day later said doctor wanted me to have a full panel of blood studies because my liver enzymes were elevated. I was shocked at my diagnosis, I have no idea where or how I contracted this virus. I then had a ultrasound and cat scan of my abdomen, they see a spot on my liver, I ended up in Oct 2009 having a liver resection.

I just completed the ribavirin and interferon drugs, they did not work, my nurse practitioner said the doctor said stop the drugs they are not working. I see my doctor this week to see what is going to be done next, it has been stressful dealing with this for almost a year now, I just pray and thank the lord for the days I feel good.

Helen S

The silent dragon

Once there was a young man, some say he was a free spirit, yet others say he was a foolish man. He would sometimes attend great parties or just hang out with his friends. He always had a longing for nature and things natural and would go for long walks in the mountains around his home land. Exploring the forests, walking along rivers and streams, or sometimes he would just sit on a high place and look down on people in his village below. The people would scurry about doing things in their daily lives but to him they looked like ants moving about. Sometimes the young man would go on long journeys with his friends to see what life was like in other villages.

One night the young man left a party he was enjoying, perhaps a little too tipsy, but he had decided to go for one of his walks in nature. He thought about the party and how much fun he had, the merriment, the stories people told, the fine drink and other party favorites, young girls dancing around the fire. It was dark and the moon was hidden behind the clouds. The man walked along in the darkness unaware that there was a dragon lurking in the darkness. He was headed to a warm spring hid away in a canyon near by. There in the spring you could rest your bones, nobody would wear cloths so you could go to the spring and be as free as you wanted. But as he walked along, he took a step but the ground was gone and in the darkness he fell. He felt himself turning in the air but the fall took for ever he thought it was the end. A tree broke his fall, but as a tree limb broke it gouged his side deeply and he landed on the ground. With great effort, he struggled the rest of the way to the spring. That night the dragon drew near and breathed his horrible breath on the man.

The next morning he awoke, still bleeding he found the village doctor. The doctor said your life is running out of you and here is life from one of the other villagers. The doctor did not know the blood had came from a villager that had been bitten by the very dragon that had hunted the young man the night before. You see in those days, no one knew the dragon, the dragon was very silent and lurked around in the shadows of darkness. Little did the young man know that an evil ran though his veins or about the great grief it would one day cause him. You see the spirit of the dragon had entered the man.

As the man grew older he did many great and wonderful things as well as foolish things. But one day as he matured and the seasons had cycled 12 times he found himself growing weak and tired and found it very hard to get things he wanted to done. He was living in a different village at the time and the village doctor in this town, had knew about the silent dragon that this young man was afflicted with. He tried to treat this great illness but the treatment required torture and was too painful for the young man to bear and when the fatigue too great the village doctor stopped what he was doing. It seemed though, that all signs of the dragon had left this man and he ventured out into life and even found happiness in marring the woman of his dreams.

After several more seasons had passed and the man was nearing the middle of his life the dragon returned. At first the man did not know it was the dragon, for there were several other symptoms he was experiencing, his entire body was under attack, it stuck his mind, his heart, the village doctors were at a loss. But then they found the evil spirit of the dragon was once again upon this man. This time the man endured the horrible torture to ride him of the silent dragon and it nearly cost him his life. The torture this time left scars which caused him to have many other ailments. This story is still ongoing...

I wrote this story as fiction; but the truth is the story is about my own life or at least a part of my life. The silent dragon is a Virus called Hepatitis C. This is not a name that I gave it but one that was adopted by those afflicted with HCV. Even drugs used to treat the virus are given fictional names like Pegasus and Co-Pegasus; these drugs are also given to cancer patients, for some people these drugs are very hard to tolerate. The spring and cliff are near Glenwood springs, Colorado. While the doctors have told me that much of my illicit drug use during high school and the first part of the 1980's was not the cause, they think I got the virus from the blood transfusion. Someone asked me how come you have so many issues; this is why I have so many health issues.

So far since my last treatment, I have remained SVR, which means the virus is undetectable. Because of the amount of time I have entered the ranks of Dragon slayer. Does that mean I am cured? There is no cure for the virus, only time will tell if it comes back and wreaks havoc in my body. The main ongoing issues I have is well monetary for one, I have used up my retirement and money I saved to get me through the treatment. Medical bills and other bills are starting to pile up. Health wise, the treatment left me with scared bone marrow, my joints are deteriorating at a faster than normal rate. Because of the disk degeneration I am experiencing neurological damage. I have memory problems which were directly caused by the treatment, but usually go away after treatment in my case they persisted. These are just a few of my scars. I feel lucky that I have cleared the virus for now. I can never take the current treatment again though. I have friends that are not so lucky, I have watched people and friends wither and die from this virus and I have friends who cannot tolerate the treatment again getting worse, my heart is crushed knowing that they may not be on this planet with us, much longer.

Charles M

I am a 60 year old professional male, I was diagnosed with HC about 37 years ago. never in those years did give the necessary attention to my illnesss. Over those years was plenty drugs and alchool abuse to my already sick liver. In August of 2009 visit a liver doctor and after several tests (F3.5) was only one decision, HCV treatment or eventually a liver transplant.

It was hard for me to realize that I really was sick to that point and need immediate medical attention. (never, never cross my mind)

Start on February 2010 the Interferon/rivarvirin treatment I just completed my 15th week. In August of 2009 my viral count was 14,000,000 today is 0 (undectectable) These 15 weeks have been a nightmare, the medication is tough, the symptoms are tough, All the side effects predictables by the doctors and drug companies are real and did show during my first 15 weeks of treatment.

I need to say and strongly recommend to anybody that is going through this is, First as soon as you are diagnosed with HCV, confront the issue immediately, follow the doctors recommendation seriously, if you need to start a treatment, do not hesitate just do it!! it is not easy but you can do it, is your life, the life of your loved ones, you will feel proud of your self and the surronding people that they care about you too. the most important is "GET ASSOCIATED TO A SUPPORT GROUP" The help that we need will come from them NOT from doctors. Doctors will give you only medical assistance only and of course we all need that but also we need help in how to live every day this new life. Join a support group and you will find out how much easer is to go through these tough times of your life.

Carlos N

I just found out I have Hep C. I really don't know how I contracted, being that I have not had a blood transfusion, have never used drugs, I am stunned! I have to my knowledge been the most cautious person I know but not carefully enough huh?

The nurse stated that it may have been through a dentist in which I have had my share of visits there! I am not trying to blame anyone, I have accepted that this may very well be the roughest ride of my life but I know I have faith in God and he moves mountains and parts seas, even walks on that same water so I know he can heal a nation.

We have to keep our faith strong and block every tactic the devil has placed before us. I know it is difficult but I am speaking what I know and not what I have heard! There are a lot of issues we could have along with what we have contracted but so far we all have breath we all have a chance to prepare for the end whatever God has chosen that to be.

Never stop fighting never stop praying and never stop believing. Remain steadfast and stay focused on what is important: Love is the greatest of them all! Be of good courage and correct any wrongs, Love you all as God loves us all!

M J

I am 38 years old, married, have 3 girls, ages 10, 9 and 3. I found out 6 days ago I tested positive for the anti-HCV virus. I was told by my doctor to take the RNA next. I did and I am awaiting the results.

I am scared out of my mind. I have been crying for these past few days and worried sick. Everything I read says people with this disease die a horrible death. I am scared for my children. I do not know what to do. I feel like I am in a bad dream and I want to desperately wake up. I am a bit angry because I have never used illegal drugs, although I had a few relationships before I was married, I don't think it was where I might have contracted this disease. I do have three tattoos and I think that one of them was the cause of this. When I was 21 years old, I had a friend who worked in the same restaurant I did. Everyone would shy away from him because he had been in prison and looked very mean (he was 24). He had tattoos all over his body up to his neck. I felt bad for him and befriended him. We hung out for a few months, and he being a tattoo artist, talked me into him giving me a "home made" tattoo. He did so, but in looking back, I am so angry because he used a regular needle, I guess the way he might have been taught in prison, and I doubt he took any precautions or sterilized his instruments. This is such a hard lesson for me.

My family believes whole heartedly that natural cures will cure my hepatitis, so I am doing some research and am looking to see a doctor that only deals with natural healing. What I have read gives me hope of a longer life. I have read a book by Manuel Lezaeta Acharan, entitled "La Medicina Natural al Alcance De Todos"--not sure it if you can find it in English. I also have started to read a book by Kevin Trudeau"Natural Cures They Don't Want You to Know About."

Other than in these reads, I have heard nothing but horrible news. I am so scared. I need to hear that there are people out there that have not died of this disease but rather of old age. I need to hear that this disease is not necessarily a death sentence.

I.G.

I G

I was diagnosed with hepatitis b in the early 70's. I was kind of sick for a month and oh so yellow. Then i was better. Blood tests for the following 30+ years showed only antibodies to the hep b and all doctors told me my body had fought off the virus.

Now, 33 years later I find out by accident that I am possitive for hepatitis c. I was shocked. I'm not sick at all. Additional blood tests show that i have an undetectable viral load and the doctor says no treatment is necessary. Seems that back in the 70's there was no test for hep c and i've probably had the hep c all along. It's strange, i feel different but not sick. Doctor says my immune system basically put the hep c in a neat little package and tucked it away. I can't find much on the internet as far as a story like mine. Anyone else ever heard of anything similar?

barbara b

Ive had hep c for about 5yrs now and recently found out I will have to undergo the combination treatment. im g type 1. Im so scared cos of the side effects as im a single mum and need to be able to function for my kids but am terrified that if I dont have the treatment I wont be around to see them grow, Im 34. If anyone has any advise or their story to share i'd love to hear it.

Marnie H

hello all.

i was diagnosed in 99 at the va hospital geno 1. treatment 2 times.neither worked,for long. Treatment seemed to make the dragon angry.got sicker.hospitalized few times because the ammonia levels. it was horrible, had to live on laxatives .in 2005 i was lucky to get a transplant at iu in indy. I was almost dead by then. these were life-changing times for me. i am healthy now. thank you holy father .hope they find a cure. i am now 51. what a life. peace be with you----- charlie

charlie baird

Have had Hep C for over 30 years. Went through the treatment with no luck. 46 weeks of hell.

I have tried everything imaginable to relieve the pain from Neuropathy in my feet and legs. The swelling was terrible.

I stumbled onto something that has changed my life. No more inflammation swelling. Pain has reduced considerably.

I suggest you take them up on the free gift bottle. God has provided something to cure everything. This may not cure HepC but it sure gave me my life back.

Go to www.KaresCactusjuice.com Tell them Terry Eisler sent you please.

Hope this does not get stripped as it has given me my life back and Kare will explain how it has affected so many lives. God bless all of you and keep praying for a cure.

Terry E

I am 57 and got hepc when i was in late teens geno 1 i havent had a cold or flu in thirty years as long as i can remember i have worked as a roofer [torcher] for the last 23 i dont no why its taking so long to affect me but know they want to put me on interferon because iam getting older the only thing is iam very thin should have another 10 or 15 on me read some of the stories they realy made me think.thank you everyone.going to join a support group.good luck to evryone and god bless

mark B

Well I just found out 4 days ago that I have hep c I do not know how bad it is. I am trying to stay positive I have 2 young beautiful girls and a very supportive family. I am an ex heroine i.v user clean now for 41 days. I go to the dr. tomorrow and am very scared i have been through and survived alot 4 a 28 yr old woman so theres no way I am going to let this bring me or my family down I will fight it 4 ever. I pray everyday 4 strength and so far i havent given up and dont plan on it so neither should u. u all r in my prayers. we will survive and come out stronger than ever. just believe! Have Faith god loves us all

Jill R

I'm 31 yrs old and found out that I have Hep C. I found out by giving blood to a blood bank. Never would have thought that I would have Hep C. Never used needles or drugs. But I do Have tattoos. Going to the doc thurs to see what I need to do. Previous to all this I was vomiting out of the blue. I went to the doctor complaining of headaches and a pain on my left side but all she did were x-rays and some blood tests but none were for Hep C . Boy is she going to flip out when she sees me tommorrow was she ever wrong with her diagnosis. I just hope that some good can come out of this. Yes I haven't been a great healthy eater but I know this wake up call will set me in the right direction. I want my daughter to see her mother healthy and loving life as she should.

Jay G

At age 23 I had a hystorectomy after being diagnosed with cervical cancer in 1973, after loosing a lot of blood before and during surgery my physician orderded a blood transfusion in order to save my life. After my surgery I went for my 6 week check-up and advised the Doctor that I felt as though I developed a cold, flu or allergy symptoms, I asked if you can get an allergy from a transfusion and he said no. A few years later I was informed that I had contacted Hep-c via a blood test.

Janine M

Hi, I was diagnosed with hep c genotype 2 in 1998. In 2000 I did the interferon-ribivirin. It was hell. Thank God It took the virus away for 8 yrs. NO TRACE....Until 2 yrs ago. It showed it's little head again.

My fear of the treatment again is horrible. BUT I WILL do it again. Yes,the headaches,the NO sleep. The sickness, But....the mental stuff. Oh MY GOD!!!!!!It took so long to get my brain back. THAT is the fear. Right now my liver enzymes are really low. I can't eat well. The doctors say low enzymes mean malnutrition and enemia. No one can answer why. I'm 49yrs old. Can I handle the treatment again? A BIG YES!!!!It gave me 8 yrs .If I get another 8 yrs It will be worth it. So...My friends....Keep trying.

Write me if you want .But OH, the mental screw....earthmom20@yahoo.com

Kim R

I AM 54 YRS. In 2007 i was diagnosed with hep c, after further testing it was found that i had end stage liver diease and needed a transplant. What shock because i actually felt pretty good. Needless to say it didn't last long.

By nov 2009 i was at mayo clinic rodchester mn. I was admitted with complications. I stayed there till feb 17 th. This was my last, i had less then 24hrs to live. We had been waiting all this time for donor, about 11pm my wife received a call that mayo had rec'd a donor and that they would try a transplant. By 8am i woke up back in my bed somewhat confused but knew i was alive. It is aug now and i am back home, up on 2 feet with my senses back.

I thank God for all my blessings evryday and think back about what myself my friends and all the unknown people that had helped in my sickness and recovery. I've had my bloodwork done wkly and have been back to mayo for my 6mos. ck-up. My bloodwork and testing has shown signs of Hep c showing up. Which we all knew that it probably would. To me Hep A B C should be right up there with Hiv & Aids as a slient killer. Any way this was my story, its the 1st time i've written about Hep c or transplant. I know that there are many others out there, that are going through some similar or have gone through the same. Praise God and cherish everyday.

Terry F

I was diagnosed hepatitis C 3 yrs back, on a routine checkup, My friends and family encouraged me to start treatment, i am a health care provider, i read it myself and started treatment first four months went fine but after that i was just got empty, i had all kind of psychological symptoms, including suicidal ideations, but i tried to make myself work by starting meditation, and continuing treatment now i have completed my six month regimen and free of virus completely, my symptoms are getting better everyday,, now i wake up daily and find myself close to real me,

Ahmad a

I was diagnosed in March of this year,2010. It was like a thunder bolt, I have not injected drugs etc, but since the early seventies was a Red Cross first aider, something I continued to do until 2008. It was not until the late eighties/early nineties that we were told to wear gloves, before that pressure was applied to a bleeding wound with your bare hand over a clean cloth!I am a retired great grand mother so you can imagine my horror when diagnosed, I insisted that my family were tested, believing that I must have infected all the dear ones that I loved. No one was, thank goodness! I have a viral load of 2,000,000 and genotype 3a, also fatty liver and mild fibrosis. I am due to start treatment within the next month and I am scared , to say the least! I have lots of family support and really want to complete the treatment. I will try to let you all know about my treatment and how I feel, once it starts.

Freda P

I had a wild time at 15 yrs of age. Not until I was 37 years old did I find out that some stupid things I did would have a life long impact on myself and my family. The best thing I ever did was to quit eating red meat. This helped me feel much better and also (I believe) slowed the damage to my liver. I just finished an experimental treatment involving silver that did not work. I am now faced with the treatment I have been refusing...the interferon. No thanks is what i've been telling the doctor but I suppose it is time to face reality.

Victoria W

My first attempt to conquer Hep C I was a responder but at the end of treatment I relapsed within the 6 month period. Shortly after that the FDA was scheduled to release Peginterferon and I was put on a waiting list and given a lottery number and then waited for the call informing me that I could received the newly FDA released Peginterferon/Combo. I think I slept the next 48 weeks. I say I think because I don't remember much... as my memory and concentration were gone. I experienced fatigue and aches but that was it. I gave up all caffeinated products and no alchol beverages which I believe was the key to my success and being able to complete the treatment. On a few occassions I drank one beer and it enhanced the side effects tenfold! I am eight years post treatment and I am still virus free. My advice is to rest, no caffeinated or alchol products and don't give up!

jo h

Hello my name is Michelle and i found out that i had hepatitis back in april of 2010 i could not accept what the docton told me so i ask that he test me again and the test came back positive for the second time how they found out because i got sick and went to the doctor because i was not feeling well. come to find out i was diganosed a daibetic and hepatitis geno type b1.

i am very angry with all this and i just dont know where to start. so after my doctor got the sugar under control she turned me over to a geneoligist who specialize in this feild of liver disease. so far they have been really great i haven taken a lot of tests. now i am going for an biospy next week but they will have to go through my neck to the liver instead of my side through the rib cage due to i am a dibetic. i am scared to death. they need to know the stage of my liver so they can further help. i am angry that i have this liver disease. i beat my self up a lot but then i bounce back. i live in cleveland ohio. i have no family here so my support is very limited. some times i feel like this is the end of my life. i am learning and grasping as much as i can about this disease. i will continue educating my self as much as possible. there are support groups out there also we as a whole has to hold on and dont give up. we may give out some times but we must not give up. god bless michelle

michelle w

The Dragon

The Dragon hisses

Fire is breath

His relentless attack

He seeks my death

From deep within

I seek my calm

I fight him back

My sword is found

The Dragon persistent

He is made to kill

I'll always resist

I climb the hill

I do my best

To not fuel his fire

He forever temps

To make me a liar

Many look down

When they hear of the fight

They say I caused it

In the dark of the night

It may be true

We can't be sure

But it is a fight to death

There is no door

I'll either kill him

Or he'll take me home

Or I'll die in the fight

Of a fate unknown

I may slip and fall

I may loose my step

The relentlessness battle

This Dragon named Hep

I hear from some

There is help on the way

A faster sword

A brighter day

Yet today I am tired

My sword swings weary

The sun behind clouds

The light dims dreary

Today I could use

To hear from a friend

A little encouragement

Some hope to send

Whatever the case

I will swing away

I have no choice

I will fight till that day

When just for a moment

He glances away

The Dragon falls

My sword finds it's way

No matter the years

As they tick away

I'll fight this Dragon

Till my dying day

Jonny D

well it all started when i was a chil.d i remember my grandma having hep c from using herion, then my mother was diagnosed some years ago. my grandmother passed away. And i know i should have known better but i got into the drugs and was using herion. i am 16 days clean today but yesterday i was diagnosed with hepatitis c and im only 23 years old. i have no children and i have my whole life ahead of me!! thats all i can write for now but i would love to share more of my story! Thank You

stacey b

hello everyone it is good to meet you all and to finally have an outlet in dealing with hep c. I don't know how I contracted hep c. I know God showed me in a dream while I was in prison back in 1983 that I would one day be faced with a deadly disease, i thought it was going to be aids but now i know it was hep c he was showing me.

In 1996 i and my now ex-wife gave blood at the blood bank and i was told my blood was no good because i was HIV positive. that was tuff news at a tuff time because i and my family was dealing with the death of my first cousin Ronald, he died of aids related complications, i remember sitting threw the funneral thinking how i was going to be next and how it would hit my family hard to lose another son {Ronald's bro died from the same thing} to the disease.

I was out of town at the funeral and said to myself i was going to get checked out when i got home to see where i stand and how to start my fight to live, cause i'm going to fight till i can't anymore.

When i got home i went to someone in health care and told the lady my blood bank visit story and how the lady just pulled me to the side in a room full of people and told me i was HIV positive and my blood was no good for donating. she gave me another test to check my T-cell count to get me started on treatment. The lab sent back my results along with a note saying the test i took was for people with HIV and it was a waste to use it on me, she said incase you missed it they are saying you are not hiv positive but you do have hepatitis c. I fell on my knees and gave God the praise. treatment hasn't worked for me and now after ten years wasted, being misinformed i need to learn every thing i can to live as healthy as i can so i can help my lady beat this cause she has it too. and sometimes i just need someone to talk to or talk at. an outlet, i hope hep c central is a new begining 4 me. Rodney v

RODNEY V

My name is Lance. My doctor thinks I contracted the virus some time in 1972. At that time i was admitted to the hospital with septa ciemia blood infection. During the operation they gave me tainted blood. I was not diagnosed till the autum of 2006.

I have been on the Pegasis program twice. doctors were very confident of clearing the virus, All my counts were dropping very fast and on time. But both times by week 16 the counts had spiked back up, and i was removed from the program.

At that time I was told there may be new drugs by 2012, with a response rate of 90%. I dont believe them anymore. I hope everyone has a better result with interferon and Ribavarin than i did.

I had all the bad symptoms, I thought the meds were going to kill me, and yes i would do it again in a heart beat. All you can do is keep on trying. Im 60 years old and I carried the virus for 34 years before it acted up. Im actualy very lucky. The biopsy came back bad .Its a very slow progression. Im going to be fine. I wish all of you Health.

Ps The operation in 72 saved my life regardless of what happens now.

Lance V

My story is on the net ....If you type in my name in google it shows up ...Sanjiv Syal Staying on Top of HCV and Heart Disease...Please feel free to share if you believe it will encourage / motivate the community

Sanjiv S

I was diagnosed with chronic HCV in October 2010. The acute infection was in 1977 so I have had HCV for 33 plus years. My viral load in October 2010 was 11.9 M/ml. After extensive research online, I discovered two integrative medicine doctors in London, one uses laser blood irradiation therapy and the other ozone autohemotherapy. Faced with the certainty of having to treat the HCV, I decided to have 10 treatments of each to see if they had any effect.

First, in November I had a red and green laser light exposed to my blood through an intraveneous fibre optic cable. Fifteen minutes of each colour every other day. I was shown a live blood analysis before and after treatment and could see visible changes in my red and white blood cell activity and characteristics.

After these 10 laser treatments, later in November, I had 10 ozone treatments, 2 per day every other day. Blood was drawn and mixed with ozone and then re-introduced back in to my vein.

All of these treatments were painless with no side effects. In fact, I had more energy then usual and felt terrific. The only other treatment was I self administered at least 1200mg of S-ame and took a multivitamin daily.

In the meantime I had a liver ultrasound. I returned to the liver clinic on the 2nd of February 2011 for follow-up blood tests and to discuss starting the more conventional interferon and ribavirin treatment. My liver scan was fine. What amazed me was that I just discovered that the blood results from the 2nd of February show that my viral load is down to 1.1 M/ml, so obviously the more unconventional approach to treatment had a great effect.

Unfortunately, in the UK the laser and ozone treatments are not funded by the National Health Service and so this cost me about £1600 ($2000). The more conventional interferon and ribaviron treatment is free on the health service.

I would like to continue with more laser and ozone treatments to see if I can completely eradicate the HCV through these unconventional approaches, saving myself from the chemical side effects associated with the more conventional approach to treatment.

My personal experience demonstrates that more research needs to be done on the use of ozone and blood irradiation therapy to treat HCV.

This may also be an approach to explore for those who have had a non-response to interferon and ribavirin treatment.

Andrew T

I figure I got Hep C between 1987-1989 when they called it non A or B. I've never had any symptons but my last viral load was 1.4 million. I'm geno type 1 the hardest to get rid of. I've been on treatment for 12 weeks. After 2 weeks my viral load dropped from 1.4 million to 308 and by week 4 I'm negitive!!!! The first shot of interferon was the worse flu like symptons but that was it. The side effects now are very mild for me. If anyone reading this is thinking about going on treatment please do it it's not as bad as people say.

I wish you all well...YOU CAN DO IT!!

Dana H

I had major surgery in 1979, thru a blood transfusion I was given the Hep C virus.

I tried the treatment for days, and coud not tolerate it, this was around 2003. I am not taking anything for the disease, I do work on eliminating stress by perceiving life very positive, taking one moment, one day at a time.

I already have cirrhosis of the liver, I get very tired at times, and other symptoms but I do not let this disease get the best of me. My way of thinking is what makes a difference. I had a viral count where my load was high and it got lowered by my attitude.

On top of having Hep C, my blood pressure was high, because of my positive thinking and learning not to become stress my blood pressure is normal.

Miriam M

It started for me always wanting to help people. At the time I was a caregiver for the elderly. I loved my job but hated when they passed away. I went to my kids high school to donate blood and really hadn't been feeling myself so I pushed on as I always do. Well a couple weeks later I got the letter from the Red Cross telling me I tested positive for Hep C, went to my family doctor and sure enough all hell broke loose. Was sent to a gastro doc. I was on treatment for two years. If it wasn't for my daughter coming home and telling me she was pregnant, I told her I'd do anything to help her. Well she had twins, a boy and a girl. I felt truly blessed. They were born early. I watched them babies while my daughter got her nursing done and graduated. I was never so proud. I think God sent them to me at the lowest point in my life. Now I've lost both of my parents in two years but I still have my granbabies. They are keeping me going with my hepc geno 1-a fear I might be going back on chemo. I have a lot of pain with it. If anyone reads this, please take your meds, drink lots of water and know you are not alone in this fight. I think we should have a bracelet for surviving hep-c. Thank you for your time. Love and prayers to all.

timmie v

It's been two months since I finished my six month treatment of interferon and ribavarin. Each week of treatment brought a new side effect. First early menopause, depression, nosebleeds, aches, etc. and finally psoriasis. The last one was the worst. Some days I was so sure I couldn't take another minute of this, but I knew if i didn't try I would not get well at all. Yes, the six months were hell, and I would do it all over again, now that I am healed. You won't want to do anything but you must force yourself to get out, walk, go to a show, anything to live as normal and productive a life as you can at this time. You will feel better if you do. Feeling strong and determined to win is as important as the medicine is in healing your body. Surround yourself with people who love you, they will understand when you're not your usual self. Never give up. It's not going to be easy but your life is worth doing what it takes and if you're a six month patient or it takes a year, it's such a short time compared to the rest of your life HEALTHY.

Kerri L

I was told I have Hep C in 1988. It was just there sleeping. Then in May of this year I woke up vomiting blood, went to hospital next day. I had bleeding ulcers, was there 4 days. With no insurance, one doesn't have choices. Was told to follow up with on doc ASAP. At this crossroads, I left California for Texas to get treatment for Hep C which was causing water buildup, swollen stomach and insomnia. My wonderful sister-in-law got me a referral to a research institute. I don't know my Genotype, they're testing for that now. I pray that I'm gonna overcome this and I will pray for you all. I thank you for sharing your life story with me. I almost forgot I got Hep C from sharing needles back in the 70's. But this disease does not care how I got it and I don't care either. It's how to fight it with faith that matters.

troy c

Hi. I was diagnosed in 2005 w/ Hep C.I am genotype 1. Biopsy showed minimal scarring, no fatty liver disease. I am now 48 yr old, healthy 130 lb, BMI of 23. Ultrasounds yearly show no liver issues. My enzymes are good, blood work is excellent, normal in every way. I excercise (bicycling, working out on total gym, horseback riding, team roping) am very active. No other health issues.

This year's checkup this past week, my Gastrologist says he wants me to start the new 3 treatments ! WOW was I shocked... SO I have been researching these treatments, and all I can determine is that after 24 weeks of this treatment I will be an unhealthy 49 yr old woman.

So why would I want to destroy my body w/ these meds only to have an 80% chance of cure? And to have abused my body in this horrible way when I feel so good now?

Can someone answer me if you have been where I am? Will look at all responses!

Thank You-

Tonda

Tonda M

In 1973 I had a blood transfusion for anemia. In 1997 I tried to donate blood and it was then I found out that I was infected with Hep C. Throughout the following 13 years all my liver function tests were normal. In 2007 the Hep C society in Toronto advised me to obtain a liver specialist and get a liver biopsy. The specialist refused based on the normal LFT. Researchers discovered in 2008 that longevity studies showed that even with normal LFT the liver can still be damaged over time. In 2010 the Hep C nurse gave an inservice to the local Doctors to explain this development. My Doctor informed me and I had an immediate biopsy which showed Grade 3 of 4 in liver inflammation and Stage 2 of 4 in liver damage. I am now in week 20 of 24 for genotype 2. I take 200mg ribivarin tabs twice a day and an injection of peginterferon every Friday. The side effects are a roller coaster ride. It seems whatever is wrong with you in the first place comes on like gangbusters like depression, indigestion, propensity for skin problems etc. Sometimes I wake up hearing a strange sound and it's me crying. I'm short of breath and have to pace myself. I swear a lot. Depression was a big problem starting in week 8 but I do things now to abate it like make sure I go outside several times a day, even though I want to lie on the couch.When I start to feel poorly I review my water consumption. My Hep C nurse instructed me to drink 9 glasses of water per day and then phoned me when the hot weather came and upped it to 13 glasses. Difficult at first. Today I fainted twice at a luncheon because it was in the sun and I was talking and laughing too much. No evidence of the virus was in my blood at week 12 and I have every reason to believe it has been eradicated. My advice to people going through the treatment is to never give up, drink lots of water, avoid negative people, swear when you feel like it and feel lucky if you live by yourself. If you don't live by yourself, go to dinner once a week and say you are sorry for anything that you might say in the coming week. Good luck to everyone.

Sheila C

Doctor gave me 3 years to live if I did not quit alcohol. I went to rehab for 35 days, thank GOD every day. Sober for the last 18 months (one day at a time). During rehab, they found thatI had genotype 2 hep c

Started treatment, interferon and ribavirine. My viral load was 5 million.

My viral load is undetected after 3 months.Treatment is working but some of the side effects can kick you in the pants. Bad, bad headaches, chills, upset stomach, vision impairment and I have lost 30 pounds. Also had to take time off work because I could not handle operating heavy equipment (did not want to end up hurting someone because i was not 100%).

I have one injection a week and take 7 pills daily for 24 weeks. I prepare myself for the injection by taking 2 xtra strength Tylenol and 1 gravol about one hour before the injection. I find it helps to offset the flu like symptoms. After that, I will take a prescribed sleeping pill to help me get thru the night. I hope this helps someone, I know it helped me. THANKS

dave k

I discovered I had HCV Genotype 1b back in 2001. Liver biopsy revealed F2B 'Bridging fibrosis'. At the time of the biopsy I was a heavy alcohol abuser,had been for decades. Most likely the fibrosis was caused mostly from alcohol abuse 'alcohol fibrosis'and with HCV made even worse. I declined treatment at first out of ignorance about treatment. March 2010 I finaly started treatment. I achieved a ETR but was a slow responder during Tx. Relapsed in july 2011. The second biopsy before Tx revealed I still had F2B, Teetotaling booze must have helped me. Another thing, the extrahepatic manifestations I suffered all these years that I didn't know were caused from HCV have gone away- burning feet,toes,fingers,numbness,dizzyness,nausea and so on, it's all went away after treatment. So my liver must of had time to heal itself significantly when on tx. Begun the new tx triple combo on 8/12/2011- incivek,pegasis and RBV with a viral load of 13,500 iu/ml. If there are no tx resistant viral rna 'mutants' Things look pretty good. I'm hoping for a Rapid response to the new tx in 30 days and a extended response in 90 days. If this happens I will have a 90% plus chance of a SVR I'm told-6 months post tx. I heard that some docs stop tx at 90 days if this occurs. Take care everyone.

Edward S

I am waiting on hep results and was looking for some positive hep success stories!!! Is there any?????????? :(

andy m

I taught aerobics and everyone at the health club gave blood regularly. I found out I was a high risk pregnancy since I was having twins and quit teaching aerobics a few months before the birth of my children. Several months after I had my children, twins, I started teaching again, there was another blood drive. I gave blood as I had regularly done in the past but this time, I got a letter in the mail that I have hep c. I was stunned. I found out later that in 1978 the hospitals were not testing the blood they gave for transfusions for Hep C. If I had known what I was going to go through -- now I would have gotten on the class action lawsuit.

I have no clue why but I pretty much got in denial over having Hep C, but 19 years later, a checkup had shown my liver enzymes had skyrocked. The doctor told me that I needed/had to get treatment. I had to go into this believing that if God opened the door for me to get this drug,with his healing word and a doc's help I would beat this ugly disease.

Commitment to care chose me to get the free drugs. I know I was fortunate. What I did not know was HOW tough the treatment is... the first injection I laid in bed like my back was going to break in half. chills... thank god for sleeping pills, I pretty much slept the weekend away. My girls, now 19, did not see much of me as I got further into the treatment, I lost ALOT of weight. My mouth was so dry I would wake up and my tongue was stuck on the roof of my mouth. Since I had Genotype 2, the doc tested me after 6 months. He said since I waited so long, it might be more resistant and I was really depressed. The antidepressants the doc had me on were so strong. I sometimes wonder how bad the treatment itself is, but the test came back that I still had the disease. I said I want to go longer. So the wonderfully kind physician, Dr. M. Troutman, who I would HIGHLY recommend if you live in Fort Worth, Tx said let's do it. He said my positive I am going to beat it attitude was delightful, but I felt like I was being poisoned. I could not function - literally tried to go to work but could not even drive to the store.... I could not pray, all I could manage to do was turn on the healing scripture tape my mother sent to me and get to the refrigerator to drink my 10th bottle of water... it was not fun!

At 7 months, my next test showed a -0 and I have been HEP C FREE FOR NOW three years....

I pray to God that it will never come back.

If you can get the treatment of Peginteferon/Ribavirin -- do it sooner than later, get a good support team... if you are on your own, find a family member to go live with. Your life is worth saving and remember the LONGER you stay on this harsh treatment, the better chances are that you can beat it... if you do not beat it one month - like me, you might beat it the next month... and believe me, any of us could take one more month if we heard our physician say, you no longer have Hep C.

God bless you and I pray God gives you his strength to overcome!

Lb C

I am 49 years old and a mother of 3. I was told that I have Hep C through random bloodwork in 2006. I couldn't believe what I heard and was so devastated. Well, I don't smoke, drink and don't do drugs. I was just a typical housewife and mom taking care of my family. But I'm in denial. Anyway, in 2008 my kidney took a bad turn and my doctor (Nephrologist) wanted me to go on treatment. I sure would like to do that but then the kidney meds would help flare up my Hep C. By the way, I'm genotype 1A, the hardest to eliminate. So I had to do my Hep C treatment first, even though I didn't have any signs of liver disease yet.

It's not the easiest treatment one would want to undergo you know. So I started my Hep C treatment in June 2009. In a week I lost 5 lbs and couldn't eat and sleep. I had no energy at all and had to stop working. In 4 months of treatment I started losing some hair and that's when depression came so bad. I asked GOD why me?

In Jan. 2010 I had a blood transfusion because my Hemoglobin went as low as 5 something. To make my story short, I went through all the bad things of Hep C treatment but its worth it though, because in just 3 months of treatment the virus was undetected.

I completed my 1 year treatment and to this day, the Virus is still undetected. The only concern I have now is that there is no guarantee that it won't come back and my thyroid was also affected by the treatment.

I am very thankful to God for never leaving my side during the bad times and to my doctors and nurse friend who administered my shot twice a week and for my family and friends. I would never have made it without their support.

Archie B

I was diagnosed with hep C in 2000 during a routine life insurance screening. I was an IV drug user during the mid to late 70's and got clean and sober July 31, 1983 and I am still alcohol free today.

I am about to undergo treatment using interferon, ribaviron and a new drug similar to teleprivir that is seeking FDA approval. I have Genotype 1B and the other day had my first meeting with the team of doctors and nurses that will be monitoring me through the course of the study. I realized during our discussion how much of an impact this disease has had on my life. Even though I am 54 but really quite healthy, the stigma attached to the disease has been tough.

Oddly enough now that treatment is here I am feeling apprehensive, scared, lots of feelings I can't identify but I am determined to kick this and look forward to putting this behind me. I am fortunate that I have a girlfriend who is supportive and will be here to help me through it.

Wayne D

Hi. I am a survival person who found out about year ago that I had Hep C. I was very angry and mad when I first found out. I thought I was going to die. The doc I saw said there is a cure for it so he sent me to a Hep C doctor. My Genotype was 3a which isn't that bad, thank God.

I took the interferon and ribiviron and at first it was hard. I did get sick the first week, but after that I was ok, just tired a lot, couldn't do much. But thanks to my family and friends, they really helped me get through it.

There were times when I wanted to give up. I was on it for 5 1/2 months. I had gotten an abscess on my back that turned into an infection, then to mersa. With the treatment I was getting it got worse so they stopped the treatment and now it is getting better.

They did a viral load in August and it was negative and they just did one in November and it came out negative. Now I have to wait for 6 months to see if it's negative. If it is, I am cured. I hope and pray that it is.

So see, if you have family and friends and a lot of support you can make it.

Lucy

Lucy M

I'm Billy, I have HepC geno type one. I have been treated twice with interferon and the virus goes undetectable, but returned both times, shortly after treatment.Tomorrow, I will begin treatment with interferon , peg and ribavarin and add a newly released drug victralless, probably spelled wrong. It is going to be a closely monitored course of treatment, apparently paying close attention to blood counts of white blood cells which makes me prone to infection.

I've noticed that as treatment gets into the mid to end stages, I could really feel the effect of the meds, but continue to push thru each day. Being more prepared this time and armed with a 6 day a week gym workout and a decent ever evolving diet and good blood pressure, important !! I am ready.

For the record, I am a recovering alcoholic and drug addict and attend regular meetings and have incorporated meditation and spirituality into my daily affairs! This in and of itself has provided me with strength and determination to persevere thru challenges, and given me a great inner strength and resolve. I am truly grateful, and can do anything one day at a time.

And so it begins 2m 9 am. I hope to be able to offer regular updates thru the next 20 to 50 weeks. Sincerely, Billy C. !!

BILLY C

Hi all,

My story starts back in 1987 when I was told I had developed some problems with my liver as shown by an increase in ALT anf SGPT levels, as well as an increase in my bili count. I was told if I didn't drink alcohol any more that I would most likely be fine for up to 5-20 years. At year five I had serious esophageal varices and it was downhill from there. The first interferon tx did not take. I ended up having a liver transplant in 1998 after several close calls with death.

I survived the transplant well but, started to develop fibrosis to stage 2. I started the cocktail of Ribovirin and Interferon and made it to month 9. My doctor wanted me to go a year. However, I started to have problems with low red cell counts as well as white cell counts and had to stop after 5 transfusions. It was not an easy treatment. I always felt very sick (like flu) and extremely weak. That was in 2006.

Today I am doing great, have beat the virus and am 13+ years out from transplant. I cannot say enough about the care I received. My message from all of this is if you have to go thru the treatment, please don't hesitate. Battle and perservere. Take your meds religously and try not to miss ANY doses. Both for the treatment and for post transplant drugs. God bless,

Dan R

Daniel R

I was diagnosed with Hepatitis C 1a when I was 3 months pregnant. That was crazy, and hard to take in. They say the chances of my baby girl having it from me is 8% which is good, but it scares the shit out of me, as you could imagine. She won't be tested until she is 18 months old, she is almost 13 months.

As for my treatment, it totally freaks me out and I haven't started yet. My viral load is at 4 thousand but it went down to 238 at one point which is amazing. I am 21, the doc says I'm young and that helps.

I got hepatitis C when I was a heroin addict for the time I was 17 to 19. I shared needles with people. I don't even remember all of them. So stupid, I wish I could go back and tell myself, hey dumb ass, you're gonna have an awesome daughter one day - don't do this. Graduate, go to college, what's the fun in being dope sick more than you are high???; Then I'd slap myself a couple of times lol.

My whole life I watched my mom nod out and my dad drank and overdosed on heroin the first and only time he did it. I always wanted to be better than that, but surprise surprise. Now I am not on heroin. I found out I was pregnant and moved 4 hours away from all the junkies that I knew.

That's the best way to do it. Don't do drugs people. There are so many things that are so worth living for. I thought overdosing was my only fear, boy was I wrong..

Natasha S

Several years ago I was diagnosed with Hepatitis C. I have no idea how long I had had it at that point. I received a blood transfusion in 1987, but I was an intravenous drug user throughout much of the 1990's. Having no health insurance I applied for assistance and was placed on a waiting list at a well known learning hospital. I waited and waited. Meanwhile, I spoke with an old friend who stated that she had eradicated the virus from her system with the use of milk thistle, and other herbs.I had nothing to lose, so I immediately began using it daily, and I ate flax seed, and started juicing, eating very little red meat, and lots of good nutrition. I continued to drink alcohol daily.

Several months later, maybe a year later, I received an appt. at this hospital and after doing tests, I was told I no longer have Hepatitis C. They can see that I did have it, sinceI have developed the antibodies, which show up. The doctors said that it is highly unlikely it would ever recur, but that I should be tested in the future.

I am now experiencing bad joint pain throughout my body. I'm unsure if it is related to the Hep C virus and former damage that may have occurred or if it is something separate entirely. Still don't have health insurance, so I may never know until it's too late.

Gabrielle f

I just found out May of 2010. I had been real ill, extreme fatigue, bones hurt, falling asleep driving. I do not pass-out, I pull over, have a pillow and blanket on hand. Can't think. Forget words, close friends' names even. Had a CT scan of organs. Spleen is enlarged. Liver is stage F2, Activity is @ A3. Have Geno 2b. With lots of Autoimmune problems.

I have my 1st Liver Biopsy coming up Dec. 22 2011 and endoscopy Jan 9 2012, to check my Portal vein. My Liver aches and BURNS. I am alone in a very small town. I told my few closest friends as soon as I found out and they all dumped me. I finally got the courage up to tell another person last week, and they are dumping me. I am so alone and scared. I have some friends some 250 miles away. They are in a bigger city, and educated. But I only get to see them randomly.

I am worried about my liver right now because it hurts.

I was mailed some info from Hep Central about filling out a new member form, so I can connect with others. I am not sure if this is the form. But I REALLY need to connect with others who understand what we go through. Thank you for reading. Z

Zolar P

HELLO EVERYONE,

MY NAME IS MILTON AND I WAS INFECTED WITH HEP A, B, AND C ALMOST 41 YEARS AGO. AT THAT TIME THERE WAS NO INFO ON HEP C, I BELIEVE. I GOT HEP C THROUGH SHARING A NEEDLE WITH 2 FRIENDS OF MINE AS A TEENAGER. THIS WAS DURING THE INTRODUCTION OF THE DRUG PLAGUE IN NYC, IN THE LATER 60'S AND EARLY 70'S. I EXPERIMENTED WITH DRUGS AND I HAD TO PAY THE PRICE.

I HAD GONE TO GET A CHECK UP 2-3 YEARS AGO, AND I FOUND OUT I HAD CIRRHOSIS, AND HEP C. WITH ENLARGEMENT OF THE LIVER. AT FIRST, I PUT OFF TREATMENT, BUT THEN, IN JUNE OF 2011, I DECIDED TO GO TO WESTCHESTER MED. CTR. IN VALHALLA, NY, TO THEIR SPECIALIZED HEP C RESEARCH DEPT (I HAD BEEN THERE 2 YEARS BEFORE, BUT INCIVEK WAS NOT OUT YET).

THEN, IN MAY OF 2011, INCIVEK HAD JUST BEEN APPROVED FOR TREATMENT IN COMBO WITH INTERFERON AND RIBAVIRIN. I OPTED TO DO THE TREATMENT AFTER MUCH PRAYER AND SOUL SEARCHING. THANK JESUS CHRIST THAT I DID. I STARTED ON JULY 11, 2011 AND I FINISH IN JUST 2 MORE DAYS, ON DECEMBER 25, 2011 OF ALL DAYS. TALK ABOUT A CHRISTMAS PRESENT FROM GOD. THAT WILL COMPLETE 24 WEEKS OF THE TRIPLE COCKTAIL.

MY VIRAL LOAD WAS 400,000 AND I WAS COMPLETELY CLEARED OF THE HEP C, IN ABOUT A WEEK TO A WEEK AND A DAY-AS SHOWN BY MY WEEKLY BLOOD LABS. I HAVE BEEN HEP C FREE THROUGHOUT THE 24 WEEK REGIMEN AND I HAVE BEEN ASSURED BY THE MEDICAL STAFF THAT I WILL STAY THAT WAY. I DO NOT SMOKE, DRINK, OR USE DRUGS, I JUST MADE MISTAKES OF DISOBEDIENCE AS A TEENAGER. I HAVE AN APPOINTMENT ON JAN 3, 2012, AND THEN IN 6 MONTHS. AFTER THAT, I WILL JUST TAKE MY USUAL ANNUAL PHYSICALS AND VISIT MY DR EVERY 6-12 MONTHS, WHICH I DO ANYWAY.

I DO NOT WANT ANYONE TO THINK THE TREATMENT WAS EASY, IT WAS NOT. THE SIDE EFFECTS ARE SOMETHING ELSE, AND YOU MUST FOLLOW THE MED REGIMEN AND YOUR MEDICAL PERSON'S COUNSEL, AT ALL COSTS. OF COURSE, THEY MUST BE COMPETENT AND IF HEP C IS THEIR SPECIALTY, DO AS YOU ARE TOLD!!! MY RESEARCH NURSE WAS SUCH A GREAT SUPPORT SYSTEM, THAT SHE WOULD RESPOND TO MY CALLS AND EMAILS ALMOST IMMEDIATELY. IT HELPED JUST TO HAVE A MEDICAL PERSON WHO GENUINELY CARED ABOUT WHETHER I LIVED OR DIED, TO BE IN MY CORNER. SHE WOULD EXPLAIN THE SIDE EFFECTS, MAKE APPTS. FOR ME, AND EVEN MADE SURE I RECEIVED MY MEDS MONTHLY BY U.P.S. I CANNOT SAY ENOUGH ABOUT MY NURSE. AT THE CORE OF MY STRENGTH WAS JESUS CHRIST, OF COURSE. MUCH PRAYER, BIBLE READING, CHURCH, AND HAVING OTHER CHRISTIANS AROUND JUST KEPT ME GOING.

JUST TO MENTION SOME OF THE SIDE EFFECTS I EXPERIENCED; (AND REMEMBER, AFTER TREATMENT, THESE SIDE EFFECTS LEAVE OR HAVE LEFT PRIOR, THEY HAPPEN PERIODICALLY-AND SOME PEOPLE DO NOT EXPERIENCE THEM)- WEAKNESS, NAUSEA, CHILLS, MUSCULAR PAIN, ITCHING, COUGHING, LOSS OF APPETITE, INSOMNIA, MINOR DEPRESSION, HEADACHES, MAYBE RASHES, VISION BLURS (NOT OFTEN), ETC. I COUNTERED EVERY SIDE EFFECT, WITH OVER-THE-COUNTER PRODUCTS. FOR COUGHING I JUST HAD COUGH LOZENGES, FOR ITCHING I JUST BOUGHT ANTI ITCHING CREMES, AND I DID ALSO BUY ELOCON®

brand of mometasone furoate cream Cream 0.1%, FOR THE ITCHING, BUT CHECK WITH YOUR DR FIRST, BEFORE USING ANYTHING. FOR OTHER SIDE EFFECTS JUST TALK TO YOUR DR AS TO WHAT TO GET AT THE PHARMACY OR STORE.

IN SPITE OF THE SIDE EFFECTS, YOU WILL ALSO FEEL VERY ALONE AT TIMES AND MAYBE EVEN SAD, BUT YOU CAN DO THE TREATMENT, JUST KEEP YOUR EYES ON THE PRIZE, YOUR NEW LIVER!!! YOU CAN ENDURE AND DO THIS, BECAUSE THE ONLY OTHER ALTERNATIVE COULD BE DEATH. THOUGH NOT EVERYONE WILL DIE FROM THE HEP C-BUT WHY TAKE THE CHANCE WITH YOUR LIFE? STOP PUTTING OFF THE CURE, NOW!!! LOOK AT THIS MEDICAL BREAKTHROUGH AS YOUR RESURRECTION AND HEALING. JUST BE SURE TO TAKE THE HEP C COCKTAIL WITH THE 3 MEDS. THERE ARE NEW MEDS ON THE HORIZON, SUCH AS vx-950 and xv-222, WHICH HAVE YET TO GET FDA APPROVAL, AS TRIALS ARE STILL UNDERWAY FOR THESE 2 NEW HEP C KILLERS.

MAY GOD BLESS YOU ALL AND I PRAY I HAVE BEEN ABLE TO HELP AND ENCOURAGE SOMEONE OUT THERE. AFTER ALL, THAT'S WHAT CHRIST DID!

MILTON R-HEALED AND FORMER HEP C PT.

MILTON R

I contracted the lovely Hep C type 1 some time in the late 70's early 80's when no one quite knew what exactly it was. It remained undetected till Feb 2006. Over the past 8 years I had been slowly getting more tired, putting on weight and feeling unwell when my new doctor decided to test me for HCV. After getting over the shock of the positive test I was sent to a liver specialist for the treatment with peginteron and ribavirin.

For 48 weeks I got just about every side effect there was, right down to hair loss and loose teeth. I lost 32 kg and became a stick person. I finished the treatment 4 years ago enjoying every day. Last week a blood test showed my liver function down for the first time since treatment so I am now waiting on results. If it turns out bad, I will do it all again but it's early days yet. To anyone thinking of trying the horror treatment, go for it. It's different for everyone. You might breeze through it and if you don't, what have you got to lose except a nasty disease.

If I have got hep c back, I will beg my specialist for another shot at killing it off. Good Luck all :)

Kerry M

Hello my name is Vicki. I BEAT IT. This is where it all began. I went with my boyfriend to one of his Va appointments and they were having a blood drive. I figured what the heck my blood might save a soldier's or someone else's life so I donated my blood to the American Red Cross and 2 weeks later I had received a letter back from them stating that I had Hep C.

My boyfriend had to go to work and all I could do was just cry because I was scared. About 30 mins later he walked back into the door and I asked him what he was doing home so early and he told me I'm more important than his job and immediately found the CDC website and he got all of the information he could and we started scheduling appointments. Even when we had no gas, we found ways to get to my appointments and back.

We fought it through a year and a half of treatment and then I went to the doctor not knowing it was my final time to see the doctor. That was a year and a half ago.

I got a letter back from my doctor and it said that there was no traces of Hep C in my blood system anymore and I feel like I have a new lease on life and I thank God every day.

The man that held me through the sickness and did everything he could to help me last year, on my birthday, took a knee after I blew out the candles on my cake. He asked me if I would marry him and I started crying after everything we have been through together and I said yes.

Now we are planning a wedding and preparing to buy a house and live the rest of our lives together. He was just a boyfriend then and now my fiance. Never underestimate the power of friends and family.

To those starting treatment, keep on your treatment and NEVER give up Hope.

Victoria F

Hi. I am a 54 yr old female that in Aug 2011 found out I have Hepatitis C type 2. Loads were low. Dr said 12 to 24 month treatment pegas and rav. 1 shot a week and 2 pills twice a day. The side affects are hell. Sometimes a good day. After my 4th treatment the virus is not detectable so I am thinking only 12 week (because that is 8 more after virus gone).But now my Dr. is saying factory says at least 24 weeks.

What is up with that? Can anyone till me how long they kept taking the treatments after it is not detectable? Should I finish the whole 6 months or stop at 3 months? We are losing all we have because I am not able to work most of the time. Also, what are my chances of it coming back after cured?

My prayers go out for all doing treatments. I just want my mind back and to feel normal.

sandra w